archive

“Human Rights are the federal, state, and case laws that provide basic protections to all citizens. These basic protections help make sure that all citizens have equal opportunity to pursue, “life, liberty and the pursuit of happiness as defined in the Declaration of Independence and by the Constitution”. People with disabilities have the same human rights as any other American citizen!” ^[1]

“One of the purposes of the United Nations is to “reaffirm faith in fundamental human rights, in the dignity and worth of the human person …”, as stated in its 1945 charter. The UN’s Universal Declaration of Human Rights (1948) includes recognition of the inherent dignity and worth of, and equal and inalienable rights of, all members of the human family as the foundation of freedom, justice, and peace in the world. The Declaration, which the United States ratified in 1992, holds that human rights should be protected by law.” ^[2]

Disability Laws

“A variety of laws have been created to make sure that people with disabilities are able to exercise and enjoy the same rights that all people exercise and enjoy.

Examples of National Disability Laws

• Rehabilitation Act of 1973

• Individuals with Disabilities Act (IDEA)

• Voting Accessibility for the Elderly

• Americans with Disabilities Act of 1990 (ADA) and Handicapped Act of 1985

• Americans with Disabilities Act of 1990 (ADA)

• National Voter Registration Act of 1993

• Assistive Technology Act of 1998” ^[3]

Rights Summary

“People with intellectual and/or developmental disabilities1 have the same basic legal, civil, and human rights as other citizens. They may need accommodation, protection, and support to enable them to exercise these rights. Their rights should never be limited or restricted without due process.” ^[4]

• “Advocacy: Advocacy is essential for promoting and protecting the civil and human rights of people with intellectual and/or developmental disabilities (IDD). All advocacy efforts by, with, and on behalf of people with IDD must be centered around the views, needs, expressed interests, and leadership of self-advocates.

• Anti-Racism: Anti-racism means being committed to the daily work of identifying and disrupting racism in both its implicit and explicit manifestations. This includes looking at public policy work with an intersectional lens, considering the intentional or unintentional impact upon people of color with intellectual and/or developmental disabilities (IDD).” ^[4]

• Autonomy, Decision-Making, Supports, and Guardianship: “Legally, each individual adult or emancipated minor is presumed competent to make decisions for himself or herself, and each individual with IDD should receive the preparation, opportunities, and decision-making supports to develop as a decision-maker over the course of his or her lifetime.” [4] “However, some people with disabilities are unable to make decisions and manage their life without support from others. In these situations, the probate court may decide to appoint a plenary or limited guardian to assume responsibility for certain decisions regarding a person’ life. A guardian has no more power than the state would have to interfere with a person’s basic human rights.” ^[1]

• “Criminal Justice System: People with intellectual and/or developmental disabilities (IDD) have the right to justice and fair treatment in all areas of the criminal justice system, and must be afforded the supports and accommodations required to make justice and fair treatment a reality.” ^[4]

• Human and Civil Right: “All people have human rights and are entitled to the protection and benefits of the civil rights laws of their country. This includes people with intellectual and/or developmental disabilities (IDD).” ^[4]

• Inclusion: “All people with intellectual and/or developmental disabilities benefit when fully included in community life.” ^[4]

• Physician-assisted suicide: “Physician-assisted suicide must be prohibited for people with intellectual disability (ID) due to the inherent risk of undue influence.” ^[4]

• Protection from Mistreatment: “People with intellectual and/or developmental disabilities must be free from abuse, neglect, or any kind of mistreatment.” ^[4]

• Self-Advocacy: “People with intellectual and/or developmental disabilities (IDD) have the right to advocate and/or be supported to act as self-advocates. ^[4]

• Self – Determination: “People with intellectual and/or developmental disabilities (IDD) have the same right to, and responsibilities that accompany, self-determination as everyone else.” ^[4]

“All people with intellectual and/or developmental disabilities have the right to accommodations, assistance, and supports they need to exercise and ensure their human and civil rights. Local, state, federal, and international governments must strongly enforce all human and civil rights.

Policy makers must act to ensure that human rights are protected by law; that any gaps or failures in the law are corrected; and those laws are enforced by respectful and knowledgeable authorities.” ^[1]

Resources

[1] https://portal.ct.gov/-/media/DDS/FactSheets/HumanRightsSheet.pdf

[2] https://www.aaidd.org/news-policy/policy/position-statements/human-and-civil-rights

[3] https://portal.ct.gov/-/media/DDS/FactSheets/HumanRightsSheet.pdf

[4] https://thearc.org/position-statements/rights-summary/

“Assistive technology isn’t new. In fact, it has been a part of the human experience for thousands of years. It is believed that eyeglasses were invented in Italy between 1268 and 1289; and, the first recorded use of a wheelchair dates back to 5th Century China.” ^[1]

What is assistive technology?

“Assistive technology (AT) is any item, piece of equipment, software program, or product system that is used to increase, maintain, or improve the functional capabilities of persons with disabilities.

• AT can be low-tech: communication boards made of cardboard or fuzzy felt.
• AT can be high-tech: special-purpose computers.
• AT can be hardware: prosthetics, mounting systems, and positioning devices.
• AT can be computer hardware: special switches, keyboards, and pointing devices.
• AT can be computer software: screen readers and communication programs.
• AT can be inclusive or specialized learning materials and curriculum aids.
• AT can be specialized curricular software.
• AT can be much more—electronic devices, wheelchairs, walkers, braces, educational software, power lifts, pencil holders, eye-gaze and head trackers, and much more.

Assistive technology helps people who have difficulty speaking, typing, writing, remembering, pointing, seeing, hearing, learning, walking, and many other things. Different disabilities require different assistive technologies.”

Following ten categories below to group AT solutions.

• Vision:
• magnifiers,
• talking devices such as a talking thermostat,
• Braille displays,
• screen reading software,
• text-to-speech systems using Optical Character Recognition (OCR),
• large print materials, and
• phones with large tactile buttons.

• Hearing
• personal amplification systems,  
• wireless TV listening systems,
• vibrating alarm clocks,
• doorbell with flashing light alert,
• portable closed captioning system,
• face-to-face dual keyboard communication system,
• amplified telephones,
• phone with captioning, and
• mobile devices with texting or specialized apps.

• Speech communication
• voice amplification systems,
• fluency assistance devices,
• artificial larynx,
• communication boards,
• speech output software,
• symbol-making software, and
• speech generating devices.

• Learning, cognition, and developmental
• memory aids,
• text-to-speech systems to support learning (not related to vision needs),
• reminder systems,
• notetaking systems,
• mobile devices with specialized apps, and
• audio books. 

• Mobility, seating, and positioning
• wheelchairs,
• walkers,
• canes,
• crutches,
• scooters, and
• power chairs as well as products designed to provide postural and pressure management.

• Daily Living
• dressing aids such as zipper pulls and button hooks,
• long handle shoe horn,
• Reacher,
• adapted kitchen tools and eating utensils,
• walker carrying bag,
• wheelchair cup holder,
• book stand,
• automatic soap dispenser,
• vacuum robot, and
• switch-adapted appliances.

• Environmental Adaptations
• door openers,
• lifts,
• ramps,
• systems designed to remotely control appliances,
• electronics, and
• other products using a switch, voice or other method of activation.

• Vehicle modification and transportation
• hand controls,
• tie and lock downs for securing a wheelchair to the floor of the vehicle,
• ramps,
• lifts,
• raised roofs, and
• adaptive seat belts.

• Computers and related peripherals
• specialized software such as screen magnification software for people with low vision,
• alternative keyboards and input devices, and
• voice recognition.

• Recreation, sports, and leisure
• switch adapted toys,
• playing card shuffler,
• camera mounts, and
• adapted sporting equipment. 

Who pays for assistive technology?

“The answer depends on the technology, the use, and the user. Many kinds of AT may cost you little or nothing, even for some very expensive items.” ^[2]

Who can benefit from assistive technology?

“People who most need assistive technology include:

• people with disabilities
• older people
• people with noncommunicable diseases such as diabetes and stroke
• people with mental health conditions including dementia and autism
• people with gradual functional decline.”

“Assistive technology has come a long way in recent years. From the invention of the wheelchair to Braille and the television remote, this exciting field of research and technology continues to adapt and evolve to meet the needs of individuals with disabilities. It is exciting to see the types of barriers it will remove in the future.” ^[4]

Resources

[1] https://mn.gov/admin/at/getting-started/understanding-at/types/

[2] https://www.atia.org/home/at-resources/what-is-at/

[3] https://www.who.int/news-room/fact-sheets/detail/assistive-technology

[4]  https://www.accessibility.com/blog/assistive-technology-for-physical-disabilities

Horizon Project provides supports and opportunities for personal growth, integration, and independence to adults with intellectual and developmental disabilities but we also provide professional development for the people who support them. Each team member have a special value to us and get to live a unique experience at HPI. Today we will have a joy to know a little bit about our team member Kendall, our Direct Support Professional 2, and learn from her.

1)    When did you start working for HPI?

I started working for August of 2016.

2)    Why did you become a Direct Support Professional at first?

I wanted to help others that didn’t have a voice. I saw the disconnect with people with disabilities with a gentleman in my class when I was in grade school, everyone didn’t understand him because he couldn’t hear and would distance themselves from him before the school taught us how to use ASL. I wanted to help others also understand that people are people.

3)    What do you feel is the most important part of being a DSP?

Making sure that the ones we support are happy, healthy and have the best life that they want to live.

4)    Could you share with us any memorable story/experience you had with clients?

One of my favorite stories is a gentleman I help take care of who would become upset at times, and he and I would go outside to moo like a cow until he was back down to a 2 to talk with staff. Or during Christmas time when managers and others went to each program to sing Christmas songs with the individuals.

5)    Do you have any advice for anyone wanting to start working with IDD clients?

Be patient, learn their dislikes and their likes and always remember that they deserve the best life.

6)    How has being a DSP (DSP 2) changed your idea of the IDD community?

It has changed my idea of IDD because when I was growing up it was feared but while working with individuals with IDD I have discovered that the ones I support just want to have the same life I live. They want to be loved and taken care for just like we all do.

Kendall is one of the amazing people that make difference and other people’s lives.

We are so thrilled to have her in our team!

What is a Mental Disability?

“Mental disability, in a broad definition, is a condition in which a person’s mental ability or capacity is moderately to severely limited. Under mental disability, a person can be psychologically disabled or intellectually disabled. When assessing for mental disabilities in a person, it is important to note that there are many factors that contribute to their development.

Mental disabilities can have a physical cause such as trauma to the brain or a traumatic injury that contributes to the disability. They can also have physical causes that occur at birth, such as a lack of development of integral structures of the brain. Drug use during pregnancy can also cause mental disabilities in children. Mental disabilities also have external factors such as childhood abuse or maltreatment. Children that are not parented well are also at an increased risk for mental disability. Children are products of the environment that they are in, and when the environment is not a healthy, or stable environment, they are at risk of developing a mental disability.” ^[1]

What are some types of mental disorders?

“There are many different types of mental disorders. Some common ones include:

• Anxiety disorders, including panic disorder, obsessive-compulsive disorder, and phobias
• Depression, bipolar disorder, and other mood disorders
• Eating disorders
• Personality disorders
• Post-traumatic stress disorder
• Psychotic disorders, including schizophrenia” ^[2]

Symptoms

“Signs and symptoms of mental illness can vary, depending on the disorder, circumstances and other factors. Mental illness symptoms can affect emotions, thoughts and behaviors. Examples of signs and symptoms include:

• Feeling sad or down
• Confused thinking or reduced ability to concentrate
• Excessive fears or worries, or extreme feelings of guilt
• Extreme mood changes of highs and lows
• Withdrawal from friends and activities
• Significant tiredness, low energy or problems sleeping
• Detachment from reality (delusions), paranoia or hallucinations
• Inability to cope with daily problems or stress
• Trouble understanding and relating to situations and to people
• Problems with alcohol or drug use
• Major changes in eating habits
• Sex drive changes
• Excessive anger, hostility or violence
• Suicidal thinking”

Sometimes symptoms of a mental health disorder appear as physical problems, such as stomach pain, back pain, headaches, or other unexplained aches and pains.” ^[3]

What causes mental disorders?

“There is no single cause for mental illness. A number of factors can contribute to risk for mental illness, such as:

• Your genes and family history
• Your life experiences, such as stress or a history of abuse, especially if they happen in childhood
• Biological factors such as chemical imbalances in the brain
• A traumatic brain injury
• A mother’s exposure to viruses or toxic chemicals while pregnant
• Use of alcohol or recreational drugs
• Having a serious medical condition like cancer
• Having few friends, and feeling lonely or isolated

Mental disorders are not caused by character flaws. They have nothing to do with being lazy or weak.” ^[2]

Path to improved health

“There are several types of treatment for mental disorder problems. They include:

• Psychotherapy or counseling. This also is called talk therapy. It is one of the most common treatments for mental health disorders.

• Prescription medicine. Prescription medicine is another popular treatment method. Medicines for mental disorders make changes to brain chemicals that are involved in emotions and thought patterns.

• Support groups. Self-help and support groups can help you gain insight into your condition.

• Other therapies. There are many types of therapies people use to help treat mental health problems. These can include physical activity, such as exercise or yoga. They can also include creative therapies. These are therapies done using means of expressing yourself creatively. They can include using art, music, movement, or writing.

• ECT or other brain stimulation therapy. Electroconvulsive therapy (ECT) is a safe procedure that sends electric currents into the brain. This causes changes in the brain that can improve and even reverse troubling symptoms. ECT and other brain stimulation therapies are often used when other kinds of treatment haven’t worked.

• Eye Movement Desensitization and Reprocessing (EMDR) therapy. This type of therapy is used to relieve psychological stress. It has become an effective way to help treat trauma, especially post-traumatic stress disorder (PTSD).

• Hospital or residential treatment program. Sometimes your mental health issues become so bad that you need to receive treatment in a hospital or a long-term program. This can happen when you can’t take care of yourself. Or it happens when you are in danger of harming yourself or others.” ^[4]

Helping a loved one

“If your loved one shows signs of mental illness, have an open and honest discussion with him or her about your concerns. You may not be able to force someone to get professional care, but you can offer encouragement and support. You can also help your loved one find a qualified mental health professional and make an appointment. You may even be able to go along to the appointment.

If your loved one has done self-harm or is considering doing so, take the person to the hospital or call for emergency help.” ^[3]

Resources

[1] https://study.com/learn/lesson/mental-disability-causes-categories.html#:~:text=Mental%20disabilities%20can%20have%20a,integral%20structures%20of%20the%20brain.

[2] https://medlineplus.gov/mentaldisorders.html

[3] https://www.mayoclinic.org/diseases-conditions/mental-illness/symptoms-causes/syc-20374968

[4] https://familydoctor.org/different-types-mental-health-treatment/

“Each October, we observe National Disability Employment Awareness Month to honor the contributions of people with disabilities to our country and to recommit to eliminating barriers in employment. This year’s theme ‘Disability: Part of the Equity Equation’ acknowledges the vital role that people with disabilities play in creating a strong workforce that reflects the diversity of American society.” ^[1]

“NDEAM is led by the U.S. Department of Labor’s Office of Disability Employment Policy (ODEP), but its true spirit lies in the many observances held at the grassroots level across the nation every year. The Campaign for Disability Employment encourages organizations of all sizes and in all industries to participate in NDEAM.” ^[2]

“National Disability Employment Awareness Month reminds us of the valued contributions people with disabilities make in our nation’s workplaces, and the 50th anniversary of the Rehabilitation Act of 1973 marks a major milestone in our nation’s ongoing quest to advance access and equity for all Americans,” said Assistant Secretary for Disability Employment Policy Taryn M. Williams.” ^[3]

“According to the Centers for Disease Control and Prevention, 26 percent of adults in the United States, or 61 million people, have a disability.” ^[1]

“Employment is an important part of community inclusion for people with disabilities. Competitive, integrated employment (CIE) – working in the community, alongside people with and without disabilities, at competitive wages – offers a direct pathway to greater independence and self-sufficiency for people with disabilities. Employers can also benefit by having a larger and more diverse talent pool when hiring.” ^[4]

How to celebrate NDEAM?

1) Discuss the importance of disability inclusion.

Consider convening a panel of leaders, experts, employees with disabilities, caregivers and allies to discuss the importance of disability inclusion at work.” ^[5]

2) Share your disability employment story and help someone share theirs.

“Let’s help more people understand the value that people with disabilities bring to the workforce. If you have a friend, family member, coworker, or neighbor with a disability who is employed, encourage them to share their story. We want as many people to join the conversation as possible! Share your stories on social media using #NDEAM or even reach out to your local news.” ^[6]

3) Host a disability awareness and etiquette session.

“Disability awareness and etiquette sessions can help employees increase their understanding of people with disabilities, uncover their misconceptions and biases and learn specific strategies for interacting with people with disabilities.” ^[5]

4) Review your hiring process.

“Job descriptions, interview questions and hiring practices that use inclusive language and comply with the Americans with Disabilities Act (ADA) are critical to improving disability inclusion, accessibility and employment outcomes.” ^[4]

5) Donate to organizations that actively promote workforce inclusion for people with disabilities.

Horizon Project provides supports and opportunities for personal growth, integration, and independence to adults with intellectual and developmental disabilities and professional development for the people who support them.

For over 40 years, Horizon Project has served some of our region’s most vulnerable citizens. And over the decades, the people of Horizon have made a difference – every day – quietly, steadily, and with fierce commitment. Support our work!

Contact us for more information:

This October, we celebrate the differences that make each of us unique as we build diverse, inclusive workplaces where all employees, including workers with disabilities, are recognized and fully accepted.

Let’s demonstrate that disabilities can be a part of anyone’s life, regardless of their profession or background.

Resources

[1] https://www.eeoc.gov/national-disability-employment-awareness-month-2022

[2] https://www.whatcanyoudocampaign.org/celebrate-ndeam/

[3] https://acl.gov/news-and-events/events-and-observances/national-disability-employment-awareness-month-2023

[4] https://acl.gov/news-and-events/events-and-observances/national-disability-employment-awareness-month-2023

[5] https://www.adp.com/spark/articles/2022/09/6-ways-to-recognize-national-disability-employment-awareness-month-at-work.aspx

[6] https://thearc.org/blog/how-and-why-to-celebrate-national-disability-employment-awareness-month-october/

Virtual reality (VR) is a promising tool for training life skills in people with intellectual and developmental disabilities.

“Intellectual and developmental disabilities (IDDs) are disorders that are usually present at birth and that negatively affect the trajectory of the individual’s physical, intellectual, and/or emotional development. Many of these conditions affect multiple body parts or systems. As of 2016, 7.37 million people in the United States had intellectual or developmental disabilities. Intellectual disability starts any time before a child turns 18 and is characterized by problems with both intellectual functioning or intelligence – which includes the ability to learn, reason, problem-solve, and other skills – and adaptive behavior, which includes everyday social and life skills.” ^[1]

What is virtual reality?

“Virtual reality is a simulated 3D environment that enables users to explore and interact with a virtual surrounding in a way that approximates reality, as it is perceived through the users’ senses. The environment is created with computer hardware and software, although users might also need to wear devices such as helmets or goggles to interact with the environment. The more deeply users can immerse themselves in a VR environment — and block out their physical surroundings — the more they are able to suspend their belief and accept it as real, even if it is fantastical in nature.” ^[2]

What are the main types of virtual reality?

“The VR industry still has far to go before realizing its vision of a totally immersive environment that enables users to engage multiple sensations in a way that approximates reality. However, the technology has come a long way in providing realistic sensory engagement and shows promise for business use in a number of industries.” ^[2]

• “Non-immersive. This type of VR typically refers to a 3D simulated environment that’s accessed through a computer screen.
• Semi-immersive. This type of VR offers a partial virtual experience that’s accessed through a computer screen or some type of glasses or headset.
• Fully immersive. This type of VR delivers the greatest level of virtual reality, completely immersing the user in the simulated 3D world. It incorporates sight, sound and, in some cases, touch.” ^[2]

How virtual reality Benefits people with IDD people?

“Virtual reality (VR) is gaining interest as a safe, controlled, and repeatable training tool for people with ID disabilities” ^[3]

“Virtual reality (VR) possesses many qualities that give it rehabilitative potential for people with ID disabilities, both as an intervention and an assessment. It can provide a safe setting in which to practice skills that might carry too many risks in the real world. Unlike human tutors, computers are infinitely patient and consistent. Virtual worlds can be manipulated in ways the real world cannot be and can convey concepts without the use of language or other symbol systems.” ^[4]

“The latest innovations in the field of virtual reality have shown that VR can visibly enhance the experience of people with disabilities, mainly because VR offers them alternative forms of interaction. They are able to enjoy the world of virtual reality just as much as they enjoy the real world. Those with autism or social anxieties, for example, are offered comfort and safety in virtual experiences. The visually impaired can discover things which they are unable to access in the real world. Virtual reality enables people with disabilities to perform activities it would otherwise be unsafe for them to do. It can also help people with certain impairments to learn new skills.” ^[5]

“VR can also help people with physical disabilities overcome barriers to education, such as transportation, accessibility, or safety issues, by allowing them to attend virtual classes, interact with instructors and peers, and access various resources.” ^[6]

“As well VR can help people with disabilities to build their confidence and self-esteem, as it can enable them to overcome their fears, challenge their limitations, and achieve their goals.“

“VR can help with a communication improvement for people with speech and hearing disabilities. A lot of assistive technology and wearable tech have been developed to help them communicate better. Now, VR and AR are aiming to take it to a whole new level.” ^[7]

“At the moment, there is an unlimited number of ways virtual reality can change the everyday life of disabled people and help them develop new skills and functions.” ^[5]

In summary, there are so much more to explore and improve about of using VR in our lives but clearly for people with disabilities, virtual reality can make huge changes, particularly those with cognitive and motor disabilities, and it can really make people’s lives easier.

Resources

[1] https://ici.umn.edu/welcome/definition

[2] https://www.techtarget.com/whatis/definition/virtual-reality

[3] https://link.springer.com/article/10.1007/s10055-023-00759-2#:~:text=VR%20facilitated%20the%20learning%20of,future%20studies%20and%20training%20programs.

[4] https://pubmed.ncbi.nlm.nih.gov/15971976/

[5] https://mazerspace.com/how-virtual-reality-transforms-the-lives-of-disabled-people/

[6] https://www.linkedin.com/advice/0/how-can-vr-help-people-disabilities-develop-new

[7] https://arpost.co/2022/02/09/7-benefits-ar-vr-for-people-with-disability/

“Everybody’s fighting some kind of stereotype, and people with disabilities are no exception.” ^[1]

“Despite all the efforts to increase awareness about Individuals with developmental disabilities, they still battle rampant misperceptions and myths. These negative perceptions encourage stereotypes that are unfair, unfounded, and even cruel. Individuals may even lose opportunities to participate in activities or hold jobs because of the notion that they are unable to fit in or live up to the challenge.” ^[2]

Here are a few myths and facts about people with developmental disabilities:

Myth 1: “The lives of people with disabilities are totally different than the lives of people without disabilities.

Fact: People with disabilities go to school, get married, work, have families, do laundry, grocery shop, laugh, cry, pay taxes, get angry, have prejudices, vote, plan and dream like everyone else.” ^[1]

Myth 2: “People with disabilities always need help.

Fact: Many people with disabilities are independent and capable of giving help. If you would like to help someone with a disability, ask if he or she needs it before you act.” ^[1]

Myth 3: “Most people with ID have a severe intellectual disability.

Fact: 85% of people with intellectual disabilities are only mildly impaired. Most have minor disabilities that don’t get in the way of playing sports, being educated at inclusive schools, and being employed.” ^[3]

Myth 4: “Intellectual disability is contagious.

Fact: This is entirely false, as intellectual disability does not spread by any type of contact.” ^[4]

Myth 5: “They cannot learn.

Fact: Like every neurotypical person, individuals with developmental or intellectual disabilities are continuously learning. They can learn life skills, academic skills, social skills, and more. Their condition does not stop them from acquiring new knowledge and skills with proper education and training.” ^[2]

Myth 6: “Medicines and vitamins can cure intellectual disability.

Fact: When intellectual disability is caused by a treatable condition, appropriate treatment of that condition can cure it. There are however, no tonics that can stimulate a damaged brain.” ^[4]

Myth 7: “They cannot start a family.

Fact: People with developmental disabilities can definitely get married and have children and grandchildren of their own. While their condition is a factor, and the chances of passing down inherited gene mutations are a consideration, many of them have relationships and families already.” ^[2]

Myth 8: “Intellectual disability is a hereditary problem.

Fact: Intellectual disability is only sometimes inherited. Most often, it is caused by external influences, some of which can be prevented.” ^[4]

Myth 9: “They are all alike.

Fact: People with and without developmental disabilities are all human beings — and all human beings are unique, possessing their own personalities, traits, likes and dislikes, strengths and weaknesses, and stories. Even people with the same condition are completely different from one another.” ^[2]

Myth 10: Their disability defines them.

Fact: The disability does not make the person. Their symptoms cause them to adapt how they do things or experience some limitations, but inside, they’re just people like your neighbors, friends, and family. ^[2]

These myths and facts are more than just fascinating trivia. Is important to have known them as a way to support individuals with intellectual and developmental disabilities. The more we learn about their conditions, the better we can help and advocate for them.

Resources

[1] https://www.easterseals.com/support-and-education/facts-about-disability/myths-facts.html

[2] https://southsidebh.org/condition/myths-misconceptions/

[3] https://www.specialolympics.org/stories/athletes/common-myths-about-intellectual-disability

[4] https://www.whiteswanfoundation.org/disorders/neurodevelopmental-disorders/intellectual-disability-mental-retardation-myths-and-facts

[5] https://www.kennedykrieger.org/stories/linking-research-classrooms-blog/myths-and-facts-about-intellectual-disability

[6] https://acc.edu.sg/en/developmental-disabilities-myths-vs-facts/

Horizon Project provides supports and opportunities for personal growth, integration, and independence to adults with intellectual and developmental disabilities but we also provide professional development for the people who support them. Each team member have a special value to us and get to live a unique experience at HPI. Today we will have a joy to know a little bit about our team member Tina, our Residential Coordinator M1, and learn from her. 

 

1) When did you start working for HPI?

August 1, 2006

2) Why did you wish to work for Horizon Project Inc.?

In 2006 I did not have a job and was able to get hired with HPI through my job injury as I had a job employer helping me find a job. This job was a get job to start at that time as I am also a wife and a mother so I was able to care for people.

3) What do you feel is the most important part of working with Adults with Disabilities?

It is able to make positive changes in their lives.

4) Could you share with us any memorable story/experience you had with clients?

These two clients are no longer in the program. But I would go bowling with one of them and he was very competitive when it came to winning. At times I would have to slow down so he could get a strike over me and I would act like I was unable to hold the bowl or be silly to get it in the gutter. 

5) Do you have any advice for anyone wanting to start working with IDD clients?

Have a soft heart and not take everything for granted. As not everything is your fault with the client. After 16+ years I have seen lots of good changes in the company that have helped with the client care.

Tina, is one of the amazing people that make difference and other people’s lives.

We are so thrilled to have her in our team!

“According to the United Nations Department of Economic and Social Affairs, “The rich diversity of our society inclusive of all its members – including persons with disabilities – can help strengthen fundamental human rights and contribute to development for all.” ^[1]

“The Americans with Disabilities Act (ADA) was passed into law 33 years ago this July. This historic law protects the rights of people with disabilities in the United States, but people with disabilities still face challenges in terms of representation and discrimination.” ^[2]

“Representation is the way in which media portrays people and their experiences, communities, ideas, and groups.” ^[1]

“The ADA recognizes disability as a protected characteristic. This means that people with disabilities have the same opportunities and rights as everyone else.

People with I/DD have been historically underrepresented in media, public discourse, and advocacy movements. This lack of representation has a real impact on people with I/DD.” ^[2]

Media is books, movies, television, news, streaming, music and more. It’s entertainment, but with the power to shape our perception in significant ways.

“We don’t see many films coming out of Hollywood with disabled characters played by disabled actors.

While Hollywood moves more slowly, the industry is making progress. Independent production companies are taking the lead on making sure we have movie options that represent people with disabilities fairly and authentically. Accurate representation promotes inclusion and understanding in all our lives.” ^[3]

“In January of 2020, an open letter with signatures from 72 actors and directors was released discussing the importance of representation of disabilities in TV and film that features actors with disabilities in those roles. Statistics show that 95% of television shows that feature a person with a disability are played by actors who do not have any type of disability. Of the 61 Oscar nominations and 27 Oscar wins for roles that showcase characters with disabilities, only two of those roles were played by an actor with a disability themselves.” ^[4]

Below we will share some great options of media where I/DD people got represented.

Movies:

1. “The Peanut Butter Falcon” Adventure-Comedy-Drama, 2019
2. “Crip Camp: A Disability Revolution” Documentary, 2020
3. “Keep the Change” Romance, 2017
4. “Carol of the Bells” Romance, 2019
5. “Best Summer Ever” Musical, 2021
6. “Bulletproof” Western, 2013
7. “Becoming Bulletproof” Documentary, 2014
8. “Jeremy the Dud” Spoof, 2017
9. Life Goes On (family drama)
10. The Theory of Everything (2014)

Shows:

1. Atypical on Netflix
2. The Good Doctor on ABC
3. Everything’s Gonna Be Okay on FreeForm.
4. Glee (musical comedy/drama

Kids’ books:

1. “Emmanuel’s Dream” (Laurie Ann Thompson & Seal Qualls)
2. “Hello Goodbye Dog” (Maria Gianferrari)
3. “Different Is Awesome” (Ryan Haack)
4. “We’re Amazing, 1, 2, 3!” (This Sesame Street storybook)
5. “Just Ask!” (Sonia Sotomayor)
6. “My Friend Suhana” (Shaila Abdullah)

There are a lot of more options that we can find here at https://www.huffpost.com/entry/childrens-books-characters-disabilities_l_6014669dc5b6aa4bad33ea80

“Share media with our loved ones that represents the diversity of our world. A well curated media selection that accurately and fairly portrays people with disabilities addresses the two primary ways media shapes our perception. It helps us learn more about people who are different from us and we have the opportunity to see ourselves within the characters and personalities portrayed.” ^[1]

Resources

[1] https://ablelight.org/blog/people-with-idd-in-media/

[2] https://www.yai.org/news-stories/more-newsletter/getting-fair-chance-how-inclusion-equity-matter-people-idd

[3] https://ablelight.org/blog/movies-for-people-with-idd/

[4] https://www.elevatustraining.com/disability-representation-in-television-and-film/

[5] https://ablelight.org/blog/idd-actor-portrayals-on-television/

“Natural supports are informal relationships with family, friends, neighbors, and community members that serve as a source of connection and support, and as a safety net.” ^[1]

“Identifying natural supports and recognizing them as sources of assistance can help people improve their everyday lives at home and at work.” ^[2]

“The term “natural supports” is often used when speaking about people with disabilities, but they are really just an extension of what people without disabilities do for each other in the workplace, at home, or in the community. Natural supports can be a coworker, supervisor, community member, friend, or family member that supports an individual with disabilities.” ^[4]

“Natural supports not only serve as a safety net but also help increase people’s material and social well-being. Natural support networks can significantly improve the quality of life of people with disabilities in a wide range of areas, from health to rights to community integration to self-determination. As such, it is important to maximize people with disabilities’ opportunities to form and connect with natural support networks, including based on their shared interests and desires.” ^[3]

“Natural Supports generally refer to unpaid relationships. However, these relationships may develop out of paid services or interactions. Relationships do evolve and change over time.” ^[6]

Benefits of Having Natural Supports Include:

• “People who have few advocates in their lives need their paid supporters to assist them in finding meaningful relationships.
• Having a support system promotes independence and acceptance while providing solutions to problems when needed
• Natural supports are people’s “safety nets” when life doesn’t go as planned
• They serve as a learning tool to support the individual’s overall growth and development.” ^[6]

Some ways to build natural supports include:

• “Participate in community activities and projects – Help out on a “Clean City Day” collecting recyclables. Join in “A Day of Caring” where groups help out in projects throughout the town or city.
• Join groups and clubs – Check out groups for people with disabilities such as Special Olympics and Best Buddies, as well as groups and clubs open to people of all abilities in your community. If you are in school, get involved in extracurricular clubs and youth groups like boy scouts or girl scouts, sign up for summer camps.
• Socialize with family and neighbors.
• Explore work opportunities – Think about what you like to do. Visit work sites where people do things that interest you. Find out if you can work as an intern or volunteer to see if you like that kind of work.
• Attend church and faith-based activities outside of traditional worship services.
• Volunteer – Love animals? Volunteer at the Humane Society. Like to help others? Volunteer at a food pantry. Like sports? Volunteer at a Boys & Girls Club.” ^[5]

“Building natural supports takes time, skill and intention, and the only way to get started is by connecting with a variety of people in everyday community spaces, recreational activities, workplaces, faith communities and schools. Many people with developmental disabilities will also require paid supports to meet their needs, but natural supports will always be – for all of us – an integral part of a healthy, vibrant, good life.” ^[7]

Resources

[1] https://link.springer.com/article/10.1007/s10882-023-09922-8

[2] https://ivypanda.com/essays/natural-supports-for-individuals-with-disabilities/

[3] https://www.c-q-l.org/resources/articles/natural-supports-improve-every-area-of-quality-of-life/

[4] https://www.twc.texas.gov/files/partners/vr-sfp-ref-sheet-natural-support.pdf

[5] https://www.arcind.org/supports-services/natural-supports/

[6] https://www.inreachnc.org/images/pdfs/naturalsupports.pdf

[7] https://inclusionalberta.org/connections/what-the-heck-are-natural-supports-anyway/