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“Businesses all over the world are making great strides for diversity and inclusion. Many organizations are realizing the need to improve their practices, and focus on creating a culture that’s inclusive of everyone.

Disability affects all of us. Most of us will have a disability in our lifetime, or care for someone with a disability.

Effective adjustments empower different ways of working, and give employees with disabilities the opportunity to thrive in the same way as any other employee. With this, employees often feel more confident to be themselves – and that goes a long way in retaining your talented workforce.” ^[1]

If you’re ready to improve your workplace’s disability and inclusion efforts, here’s where to start.

1) “Embrace the Benefits: If you do have to make special accommodations for an employee, the costs are usually under $500 — and there are often tax incentives available to help with that expense. Studies have shown that businesses with more representation from disabled people tend to make more money — and that disabled people stay longer and are more loyal, in general. (And we all know how expensive employee turnover can be, so any investment that helps retention tends to pay for itself quickly.)” ^[2]

2) “Incorporate Disability Training into Your Onboarding Process: Your organization’s values should be immediately apparent. Even during the interview process, make sure to emphasize that this is an Equal Employment Opportunity and that your team is committed to promoting an inclusive environment.” ^[3]

3) “Provide the Right Education, Training, and Resources:  As an employer, you’ll have to do more than just hire disabled people to keep them on staff. Just like any other employee, you’ll also need to make sure they get the support they need to do their jobs properly, and that they have a clear path for success and advancement.” ^[2]

4) “Model Appropriate Behavior: No matter your role within an organization, you are responsible for modeling the behavior you want to see from others. This includes your attitude, language and actions. In order to promote an inclusive environment for those with disabilities, you want to set an example of the standard you expect from your peers. Be a catalyst of positive change. Engaging in discussions, modeling, and creating opportunities to practice can promote a greater understanding of others’ experiences.” ^[3]

Any company has different culture but all can adapt to inclusion.

Promoting disability awareness with your team from all angles. As leaders, employees, and ultimately caring individuals, we can all benefit from committing to promoting disability awareness.

Resources

[1] https://www.texthelp.com/resources/blog/3-reasons-to-bring-disability-inclusion-to-the-mainstream/

[2] https://www.eliinc.com/improve-disability-inclusion/

[3] https://www.herzing.edu/blog/5-ways-promote-disability-awareness-workplace

“Stress is how we react when we feel under pressure or threatened. It usually happens when we are in a situation that we don’t feel we can manage or control.

When we experience stress, it can be as:

• An individual, for example when you have lots of responsibilities that you are struggling to manage
• Part of a group, for example if your family is going through a difficult time, such as bereavement or financial problems
• Part of your community, for example if you belong to a religious group that is experiencing discrimination
• A member of society, for example during natural disasters or events like the coronavirus pandemic

If you feel stress as part of a bigger group, you may all experience it differently. This can happen even if the cause of your stress is the same.” ^[1]

“Managing stress is a problem for all people as it can cause anxiety, headaches, and tension, to name just a few things. We also know that when stressed, we are less likely to handle difficult situations well. People with IDD, however, often have a much harder time with managing stress than other people. There are a few reasons for this.

First, people with IDD often have more stressful lives than typical people. Second, people with IDD often don’t have as many good things going on in their lives that would help them take their minds off of stressful things. Third, people with IDD haven’t learned (or had the opportunity to learn) how to manage stress. These things all go together to say that people with IDD don’t have as much “wellness” in their lives.” ^[2]

How to Manage Stress for People with Disabilities

“Managing stress is crucial for individuals with disabilities, as it can greatly impact their well-being. Fortunately, numerous strategies and tools are available to help alleviate stress and promote relaxation:

• Vitamins are vital in supporting mental and emotional well-being and can be particularly beneficial for individuals with disabilities or conditions. Certain vitamins, such as B-complex and vitamin D, have been linked to stress reduction and mood improvement.

• Personal care products also play a significant role in managing stress. Essential oils such as lavender, chamomile, and ylang-ylang can be diffused or applied topically to promote relaxation and reduce anxiety. Personal care products such as bath salts or shower gels infused with calming scents can create a soothing environment for individuals to unwind and alleviate stress.

• Massage can be valuable tools for stress management for individuals with disabilities. Massages have long been recognized for their therapeutic benefits, including stress reduction and muscle relaxation.

• Exercise and fitness products can be pivotal in stress management for individuals with disabilities or conditions. Engaging in physical activity releases endorphins, known as “feel-good” hormones, which can enhance mood and reduce stress levels.

• Meditation is a practice that involves training the mind to focus and redirect thoughts. It can be particularly beneficial for individuals with disabilities or conditions as it helps cultivate mental clarity and inner peace. There are various forms of meditation, including mindfulness meditation, guided visualization, and loving-kindness meditation.

• Deep breathing exercises are another effective relaxation technique. When we are stressed, our breathing tends to become shallow and rapid. Deep breathing involves taking slow, deep breaths, filling the lungs fully and exhaling slowly. This activates the body’s relaxation response, slowing the heart rate and promoting a sense of calm.

• Progressive muscle relaxation is a technique that involves systematically tensing and relaxing different muscle groups in the body. Progressive muscle relaxation promotes relaxation, reduces muscle stiffness and pain, and enhances overall well-being.

• Support pillows are specialized pillows designed to provide comfort and support to individuals with disabilities or conditions, making them valuable tools for managing stress. These pillows are carefully crafted to cater to specific needs and can offer a range of benefits that contribute to stress reduction and overall well-being.

• Herbal supplements are natural plant products widely used to promote health and well-being. Herbal supplements offer a holistic approach to stress management by supporting the body’s natural systems and promoting relaxation.

• Nutritional foods and drinks are vital in managing stress for individuals with disabilities. A balanced and nourishing diet can provide essential nutrients that support overall well-being, boost energy levels, and enhance the body’s ability to cope with stress. Incorporating specific foods and drinks into one’s diet can offer numerous benefits and contribute to a healthier stress response.

• Body care products can play a significant role in helping individuals with disabilities manage stress and promote overall well-being. These products encompass a wide range of items, including skincare, bath products, lotions, and more, designed to nurture the body and provide a sense of relaxation and self-care.

• Foot care products are essential for helping individuals with disabilities manage stress and improve their overall well-being. These products are designed to address various foot-related concerns, promote comfort, and relieve pain or discomfort, which can reduce stress.

Helping adults with disabilities to understand that stress is a normal reaction to both positive and negative daily stimulants, allows them to learn how to deal with the situation, adding the suggested activities above and giving the support they need are an effective way to minimize and avoid the stress. Together we can make a big difference.

Resources

[1] https://www.mind.org.uk/information-support/types-of-mental-health-problems/stress/what-is-stress/

[2] https://mn.gov/dhs/assets/stress-management-0817_tcm1053-309324.pdf

[3] https://avacaremedical.com/blog/how-to-manage-stress-for-people-with-disabilities-or-conditions.html

[4] https://digitalcommons.csumb.edu/cgi/viewcontent.cgi?article=1496&context=caps_thes_all

Horizon Project provides supports and opportunities for personal growth, integration, and independence to adults with intellectual and developmental disabilities but we also provide professional development for the people who support them. Each team member have a special value to us and get to live a unique experience at HPI. Today we will have a joy to know a little bit about our team member Cheryl, our Nurse (RN), and learn from her. 

1) When did you start working for HPI? 9 years ago.

2) Why did you wish to work for Horizon Project Inc.? My life passion is to make a difference in people’s lives, and helping them to live as healthy of a life as possible.

3) What do you feel is the most important part of working with Adults with Disabilities? Helping them to have a full, healthy and happy life.

4) Could you share with us any memorable story/experience you had with clients? My favorite thing is when a client asks me for a hug! !  I also participated in last year’s calendar contest and made homemade zucchini lasagna with a client and it was selected to be in the calendar.

5) Do you have any advice for anyone wanting to start working with IDD clients? Working with IDD clients is a calling. You must have a huge heart and lots of compassion. Patience is also key. It is worth it!!

Cheryl, is one of the amazing people that make difference and other people’s lives.

We are so thrilled to have her in our team!

“A Degenerative Disorder is one in which the brain and nerve cells gradually deteriorate, causing declines in mental and/or physical functioning. Patients may experience major memory loss and changes in personality or behavior, or they may suffer from problems with movement, balance, speech, and muscle weakness.” ^[1]

Risk factors

“What are the general risk factors for degenerative diseases?

Aging is one of the common risk factors for many degenerative diseases. It entails diverse biological changes.

At the cellular level, a cell is aging when it loses its ability to divide and remain metabolically active.

At the tissue and organ level, an aged biological structure is one that eventually wears off. Their structure and function are no longer as potent as they were when they were young.

This is often attributed to the genetic changes inside the cell, particularly the shortening of the telomeres. Deterioration over time can occur as a result of telomere degeneration. Consequently, the cell loses its ability to function upon reaching a certain point. When several cells lose their capacity to divide and function effectively, the body would, therefore, be impaired. The disease manifests as symptoms appear.

Apart from natural degenerative changes caused by DNA damage accumulation from aging, the body may also be susceptible when exposed to many stressors, e.g. oxidative stress.

Mitochondrial DNA mutations are also an important risk factor.” ^[2]

Neurodegenerative disorders include:

• “Alzheimer’s disease and other memory disorders
• Ataxia
• Huntington’s disease
• Parkinson’s disease
• Motor neuron disease
• Multiple system atrophy
• Progressive supranuclear palsy” ^[3]

Symptoms of Neurodegenerative Disorders

“With their progression, these disorders can affect every aspect of a person’s life, such as:

• Mobility and balance
• Abnormal movements
• Swallowing
• Bladder and bowel function
• Blood pressure fluctuation
• Sleep
• Breathing
• Heart function
• Memory and cognitive abilities
• Mood
• Speech” ^[3]

Treatment/Strategies for Degenerative Disorder

“Neurodegenerative diseases are horrible illnesses to have, and there is currently no cure; however, researchers around the world are looking into ways to help people with these diseases. One of the most exciting treatments uses stem cells to replace the neurons that have died. With so many brilliant minds working on a cure, hopefully there will soon be help for people with these diseases!” ^[4]

6 Effective Ways to Prevent Degenerative Diseases

“Your health is influenced by viruses and bacteria, your genes and your environment – which are not all within your control. But lifestyle factors also play an important role in developing and preventing illness. Have a look at some simple steps you can take to significantly improve your health and prevention of cancer, cardiovascular disease, diabetes, and other age-related disease.

1. Reach and Keep a Health Weight
2.  Begin a Regular Exercise Program
3.  Improve Your Diet
4. Have Your Body Antioxidant Level Scanned
5. Take Dietary Supplements
6. Take Genetic Expression Supplements” ^[5]

IDD People with Degenerative Diseases

People with intellectual disabilities (ID) age faster and have a higher prevalence of degenerative diseases.

“Individuals with developmental disabilities (DD) are at a greater risk for the full range of psychiatric diagnoses, and specific genetic etiologies confer an increased risk for specific mental health issues, related in part to the higher rate of intellectual disability in this population. Interest in dual diagnosis has increased and various assessment measures and treatments are being developed; however, there is still much work to be done to ensure that diagnostic criteria are appropriately applied to the IDD population. Controlled research studies are needed to examine the effectiveness of interventions tailored for level of functioning and the etiology of DD.” ^[6]

Resources

[1]https://www.alleydog.com/glossary/definition.php?term=Degenerative+Disorder

[2] https://www.biologyonline.com/dictionary/degenerative-disease

[3] https://utswmed.org/conditions-treatments/neurodegenerative-disorders/

[4] https://kids.frontiersin.org/articles/10.3389/frym.2018.00070

[5] https://powerfulpatients.org/2019/02/27/6-effective-ways-to-prevent-degenerative-diseases/

[6] https://www.sciencedirect.com/topics/neuroscience/developmental-disability

“Metabolic developmental disabilities are hundreds of different conditions that develop because of an impediment in the way that the metabolism works, often as a result of genetic defects inherited from both parents.

The metabolism is all the chemical reactions that your body uses to live. It creates energy, gets rid of chemicals that you no longer need, stores chemicals for later use, and uses chemicals in the best way. Together, these things are the metabolic process. And when it doesn’t work just right, many things can go wrong.” ^[1]

“Metabolism refers to the ongoing biochemical processes that maintain the functioning of living organisms. It is the balance of two processes:

Catabolism: Producing energy from breaking down larger molecules into smaller ones. For example, this may involve breaking down carbohydrate molecules into glucose.

Anabolism: Consuming energy to build new cells, maintaining body tissues, and storing energy.” ^[2]

What Causes a Metabolic Disorder?

“In many cases, metabolic disorders are caused by genetic mutations. This means that one or more genes are altered so that they no longer function properly. Genes are responsible for coding for enzymes that facilitate the metabolism of different nutrients.

For example, mutations in three genes in maple syrup urine disease code for an enzyme called branched-chain alpha-keto-acid dehydrogenase (BCAD), which breaks down BCAAs.5

These genetic mutations are often passed down from one or both parents. If both parents carry one mutated recessive gene in a gene pair, though they may not have the disorder, they still can pass down the gene to their offspring, who will have the disease.

Other metabolic disorders, like diabetes, can be caused by organ dysfunction. Type 1 diabetes is considered an autoimmune disease with various contributing factors, both genetic and environmental.” ^[3]

Metabolic Disorder Symptoms

“Symptoms of metabolic disorders depend on the disorder and how serious it is. Common symptoms include:

• Unintended weight loss, or a failure to gain weight and grow in babies and children
• Unexpected weight gain
• Tiredness and lack of energy
• Changes to the skin – color, bruising easily, thinning, slow to heal
• Belly pain and vomiting
• Decreased appetite
• Feeling hungry and thirsty, even though you are eating
• Developmental delays in babies and children — they don’t reach milestones when they are supposed to.” ^[4]

Metabolic Disorder Diagnosis

“A doctor will ask about symptoms and check medical and family histories. They will look for the presence of metabolic diseases in family members, which may indicate a genetic cause.
Metabolic disorders can have a wide range of impacts on the body. This means that doctors may use several different medical tests to identify the problem. Some conditions, such as Gaucher’s disease, have such a range of symptoms that it can take longer for doctors to diagnose them.
However, a diagnosis will typically involve a blood test. For example, doctors may use a blood test to check for abnormal blood glucose levels, which are a sign of diabetes.” ^[5]

Treating Metabolic Disorders

“Treatment will depend on the type of metabolic disorder you have. Often diet modifications are necessary. A healthcare provider may advise limiting or restricting the nutrients or substances your body can’t metabolize.

In some cases, such as with Tay-Sachs disease, treatment may focus on reducing symptoms using anti-seizure medications.8 In the case of type 1 diabetes, individuals must monitor their blood sugar levels and inject themselves with insulin, the hormone their body does not produce.3” ^[3] 

How do I prevent or reverse metabolic syndrome?

“Since physical inactivity and excess weight are the main underlying contributors to the development of metabolic syndrome, exercising, eating healthy and, if you have overweight or obesity, working toward a weight that’s healthy for you can help reduce or prevent the complications associated with this condition. Your doctor may also prescribe medications to manage some aspects of your problems associated with metabolic syndrome. Some of the ways to reduce your risk:

• Healthy eating and achieving a weight that’s healthy for you if you have overweight or obesity: Healthy eating and moderate weight loss, in the range of 5% to 10% of body weight, can help restore your body’s ability to recognize insulin and greatly reduce the chance that the syndrome will become a more serious illness.
• Exercise: Increased activity alone can improve your insulin sensitivity.
• Dietary changes: Maintain a diet that keeps carbohydrates to no more than 50% of total calories. “^[6]

Metabolic Disorder in adults with IDD

“People with IDD have an increased risk for cardiovascular diseases and associated premature mortality when compared to the general population. Metabolic disorder and its components are highly predictive of cardiovascular diseases.” ^[7]

The recommendation is that this group needs to be constantly monitored because the symptoms of a metabolic condition can worsen without treatment and may lead to serious complications.

Take care of yourself and ask for help.

Resources

[1] https://www.integrityinc.org/types-of-developmental-disabilities-nervous-system-sensory-metabolic-and-degenerative/

[2] https://www.medicalnewstoday.com/articles/metabolic-disorders#definition

[3] https://www.verywellhealth.com/metabolic-disorders-7368902

[4] https://intermountainhealthcare.org/services/diabetes-endocrinology/conditions/metabolic-disorders/

[5] https://www.medicalnewstoday.com/articles/metabolic-disorders#diagnosis

[6] https://my.clevelandclinic.org/health/diseases/10783-metabolic-syndrome

[7] https://pubmed.ncbi.nlm.nih.gov/32893439/

“Sensory development issues are characterized by the ways that an individual processes sensory information. Generally, those with sensory developmental concerns are assumed to have difficulty handling loud noises or bright lights. However, there are many ways that sensory developmental disorders can present.” ^[1]

“Different types of sensory disabilities affect one or more senses; sight, hearing, smell, touch, taste or spatial awareness.

As 95% of the information about the world around us comes from our sight and hearing, a sensory disability can affect how a person gathers information from the world around them.” ^[2]

“The main causes of sensory disabilities include accidents or injury, genetic factors, illnesses, or environmental factors. Some of the sensory disabilities can be corrected through surgery, while others are long-life disorders.” ^[3]

4 Most Common Types of Sensory Disabilities

Sensory disabilities can be divided into the following types:

• Autism Spectrum Disorder
• Blindness and Low Vision
• Sensory Processing Disorder
• Hearing Loss and Deafness

1. Autism Spectrum Disorder

“Autism spectrum disorder is a multiplex development condition that necessitates persevering challenges in non-verbal or verbal communication, social interaction, and repetitive behaviors.  The symptoms of ASD vary from person to person. Being a lifelong developmental disability, Autism spectrum disorder affects the way an individual interacts with those around him.” They also have difficulties in communication and social interactions. Autism spectrum disorder may be caused due to genetics or environmental factors.” ^[4]

2. Blindness and Low Vision

“Blindness and low vision” covers a broad variety of definitions, including legal blindness, limited visual acuity, and color blindness. People with low vision have different experiences from people who are blind. Blind persons may use mobility aids, including canes and guide dogs.

Low vision usually interferes with the performance of daily activities, such as reading or driving. Persons with low vision may prefer to read large print. A person with low vision may not recognize images at a distance or be able to differentiate between colors of similar hues.

Causes: Uncorrected refractive errors, Cataract, Age-related macular degeneration, Glaucoma and/or Trachoma.” ^[5]

3. Sensory Processing Disorder 

“SPD is formerly referred to as sensory integration dysfunction. It is a neurological condition that interferes with the body’s ability to interpret sensory messages from the brain and convert those messages into appropriate motor and behavioral responses. Sensory Processing Disorder makes patients have difficulties filtering out unimportant sensory information (like the background noise of a busy school hallway) and causing them to feel overwhelmed and over-stimulated in certain environments.

Common Symptoms:

• Be unable to tolerate bright lights and loud noises like ambulance sirens
• Refuse to wear clothing because it feels scratchy or
• Be distracted by background noises that others don’t seem to hear
• Be fearful of surprise touch, avoid hugs and cuddling even with familiar adults
• Be overly fearful of swings and playground equipment”

Often have trouble understanding where their body is in relation to other objects or people Treatment is usually done through therapy. Research shows that starting therapy early is key for treating SPD.“

4. Hearing loss and deafness

“Hearing loss, also known as a hearing impairment, is the partial or total inability to hear. If someone has very little or no hearing, the term ‘deaf’ may be used.

Damage to any part of the external, middle, or inner ear can cause hearing loss which can range from being mild to profound. Causes of hearing loss can be quite varied and can include problems with the bones within the ear, damage to the cochlear nerve, exposure to noise, genetic disorders, exposure to diseases in utero, age, trauma, and other diseases.” ^[2]

What causes sensory disabilities?

“Sensory disabilities have a wide range of causes depending on the specific type of sensory disability. They can be congenital, meaning someone is born with them due to a genetic mutation or maternal illness; or they can be genetic, meaning there is some alteration in genetic material that causes the impairment; or they can be metabolic, meaning a chronic illness or lifestyle-related cause affects someone’s senses; or they can be due to a physical injury which impairs a person’s senses. Whatever the specific cause of a person’s sensory disability, they all share a common factor: impaired neurological function.” ^[6]

What kind of support do people with sensory disabilities need?

Depending on an individual’s sensory disability and the specific needs that may arise to accommodate it, there are many resources available, including therapy, devices that can improve a person’s quality of life and the amazing Direct Support Professionals.

A Direct Support Professional (DSP) is someone who works directly with people who have intellectual or developmental disabilities. DSPs aim to assist people in realizing their full potential. They help people become integrated and engaged in their community.

Resources

[1] https://www.integrityinc.org/types-of-developmental-disabilities-nervous-system-sensory-metabolic-and-degenerative/

[2] https://www.aruma.com.au/about-us/about-disability/types-of-disabilities/types-of-sensory-disabilities/

[3] https://www.enableme.ke/en/article/4-most-common-types-of-sensory-disabilities-1535

[4] https://nuprisma.com/sensory-disabilities-types-effects-and-treatment/

[5] https://kines.rutgers.edu/dshw/disabilities/sensory/1061-sensory-disabilities [6] https://mapleservices.com.au/types-of-sensory-disabilities-and-impairment/

“Intellectual and developmental disabilities (IDDs) are disorders that are usually present at birth and that negatively affect the trajectory of the individual’s physical, intellectual, and/or emotional development. Many of these conditions affect multiple body parts or systems.

Intellectual disability starts any time before a child turns 18 and is characterized by problems with both intellectual functioning or intelligence – which includes the ability to learn, reason, problem-solve, and other skills – and adaptive behavior, which includes everyday social and life skills.

The term “developmental disabilities” is a broader category of often lifelong disability that can be intellectual, physical, or both. “IDD” is the term often used to describe situations in which intellectual disability and other disabilities are present. Examples of developmental disabilities include autism, behavior disorders, brain injury, cerebral palsy, Down syndrome, fetal alcohol syndrome, intellectual disability, and spina bifida.” ^[1]

Types of developmental disabilities

One of the types of developmental disabilities is Nervous System.

“Developmental disabilities that affect the nervous system (also called neurodevelopmental disorders).” ^[2]

“Neurodevelopmental disorders are conditions that affect how your brain functions. They range from mild impairments, allowing those affected to live fairly normal lives, to severe disorders that require lifelong care.” ^[3]

“Neurodevelopmental disorders vary by the:

• way that they present
• symptoms that appear
• outcomes of the condition

complications that may accompany them.” ^[2]

Types and symptoms of common neurodevelopmental disorders

“Here are some common types of neurodevelopmental disorders and their symptoms:

Schizophrenia: Disorganized thoughts, hallucinations, delusions, and withdrawal from friends and family.

A.D.H.D.: Distractibility, hyperactivity, impulsiveness, and inattention.

Autism: Difficulty communicating, resisting human touch, self-harm, and little or no eye contact.

Tourette’s syndrome: Grunting or coughing, shoulder shrugging, eye blinking, and other tics.” ^[4]

What causes neurodevelopmental disorders?

“Although the etiology remains unknown in many cases, various factors can affect normal brain development. Causes can be classified as follows:

Genetic causes: for example, genetic mutations and metabolic conditions at conception.

Prenatal causes: such as nutritional deficiencies and maternal infections during pregnancy.

Perinatal causes: for example, those due to complications that arise during labor, typically a lack of oxygen (hypoxia).

Postnatal causes: refer to factors such as traumatic brain injury, infections like meningitis or exposure to environmental toxins after birth.” ^[5]

Neurodevelopmental Disorders Treatment

“There is no cure for neurodevelopmental disorders, but there are treatments available to help children and adults manage their symptoms. These therapies typically involve a combination of medications, behavior therapy, speech therapy, and psychological counseling. Educating people about their condition is also an important part of treatment as it can help them understand how to live with and manage their disorder.” ^[6]

How Direct Support Professionals (DSPs) can help people with Neurodevelopmental Disorders?

“A direct support professional provides daily supports to people with intellectual and developmental disabilities in a variety of settings, including group homes and supported living services. DSPs assist people in reaching their own personal goals, while also providing coaching, guidance and support for daily tasks. They’re trustworthy, dedicated people who want to help individuals with intellectual or developmental disabilities claim the quality of life that they deserve and are meant to have.” ^[8]

DSPs do their best to make difference in peoples’ lives, we all can do our best in any way to also promote a easier life for those with Neurodevelopmental Disorder.

Resources

[1] https://ici.umn.edu/welcome/definition

[2] https://www.integrityinc.org/types-of-developmental-disabilities-nervous-system-sensory-metabolic-and-degenerative/

[3] https://www.dignityhealth.org/las-vegas/services/neurological-care/neurodevelopmental-disorders

[4] https://www.unitedwecare.com/a-comprehensive-guide-to-neurodevelopment-disorders/

[5] https://neuronup.us/cognitive-stimulation-news/neurodevelopmental-disorders/neurodevelopmental-disorders-concept-types-and-treatment/

[6] https://www.empowerbh.com/blog/what-are-neurodevelopmental-disorders/

[7] https://www.shionogi.com/global/en/sustainability/society/social-contribution-activities/developmental-disorders.html [8] https://ablelight.org/blog/what-is-a-direct-support-professional/#:~:text=A%20direct%20support%20professional%20provides,and%20support%20for%20daily%20tasks

“Disability Pride Month is an annual event celebrated in recognition of the signing of the Americans with Disabilities Act (ADA) on July 26, 1990. That same year, Boston held the first Disability Pride Day. The first official celebration of Disability Pride Month occurred in July 2015, which also marked the 25th anniversary of the ADA. Since then, cities across the country have celebrated disability pride month with parades and other festivities.” ^[1]

Disability pride emerged in response to negative views of disability and to promote human rights.

What is ADA?

“ADA means the Americans with Disabilities Act. The Americans with Disabilities Act was passed on July 26th, 1990.

ADA promotes “accepting and honoring each person’s uniqueness and seeing it as a natural and beautiful part of human diversity” and connects it to the larger movement for disability justice.” ^[2]

“The ADA lays out provisions for increased accessibility to physical infrastructure, while also encouraging employers to ensure work environments accommodate individuals with disabilities. The civil rights of people with disabilities are also protected within the ADA, in efforts to prevent discrimination in the workplace and overall.” ^[3]

More information about ADA: https://adata.org/factsheet/ADA-overview

The Flag

“Created in June 2019 by disabled activist Ann Magill, the Disability Pride flag represents:

Having All Six “Standard” Flag Colors: signifying that Disability Community is pan-national, spanning borders between states and nations.

• The Black Field: Mourning and rage for victims of ableist violence and abuse including mourning disabled lives lost to murder, suicide, neglect, abuse, and eugenics.
• The Diagonal Band: “Cutting across” the walls and barriers that separate the disabled from normative society, also light and creativity cutting through the darkness
• The White Stripe: Invisible and Undiagnosed Disabilities
• The Red Stripe: Physical Disabilities
• The Gold Stripe: Neurodivergence
• The Blue Stripe: Psychiatric Disabilities
• The Green Stripe: Sensory Disabilities

With input from folks with visually triggered disabilities, Ann redesigned the flag in 2022 after feedback that the ways the colors were laid out caused sensory issues when scrolling.” ^[4]

How to celebrate Disability Pride Month

• Walk in a Disability Pride Parade

“In 1990, the first Disability Pride Parade was held in Boston. Today, Disability Pride parades take place in communities all across the nation. Support your disabled friends and family members by joining them for parade activities.” ^[5]

• Educate yourself about ableism

“According to AccessLiving.org, ableism is defined as: “The discrimination of and social prejudice against people with disabilities based on the belief that typical abilities are superior. At its heart, ableism is rooted in the assumption that disabled people require ‘fixing’ and defines people by their disability.” Sometimes even those who mean well have ablest attitudes. To learn more about ableism, visit Access Living.” ^[5]

• Learn about Disability First language.

“Avoid offensive language about disabled people. Phrases such as “wheelchair bound,” or “suffering from” frame disability in a negative and frightening light. Similarly, descriptors such as “crazy,” “dumb,” “lame,” or “idiot” are all insulting and disrespectful.

For some time, there has been disagreement about whether it is preferable to use “people-first language” i.e., “people with disabilities” or disability-first language i.e., “disabled people.” The ADA National Network has a guide to disability language but when in doubt, ask individuals what they prefer.” ^[5]

• Learn more about those with disabilities

“You can read books or watching movies (the movie, “Coda” is a great example). Check out this list of books by thecatchpoles.net.” ^[6]

• Hire disabled people

Disabled people are capable of anything. Give them a chance.

• Make donations or volunteer

“Talk with any local organizations that support people with disabilities.” ^[6]

Let’s support and celebrate together this month!

“Disability Pride is all about reminding ourselves and the rest of the world that we MATTER and have VALUE just the way we are.”

Resources

[1]https://www.americanbar.org/groups/diversity/resources/celebrating-heritage-months/disability-pride-month/

[2] https://www.verywellmind.com/understanding-disability-pride-month-5193069

[3] https://userway.org/blog/disability-pride-month-a-quick-guide/

[4] https://www.dawsonwomensshelter.com/events/disability-pride-month-2023

[5] https://enablingdevices.com/blog/eight-ways-to-celebrate-disability-pride-month/

[6] https://alsoweb.org/honor-disability-pride-month/\

Horizon Project provides supports and opportunities for personal growth, integration, and independence to adults with intellectual and developmental disabilities but we also provide professional development for the people who support them.

Each team member have a special value to us and get to live a unique experience at HPI.

Today we will have a joy to know a little bit about our team member Tanna our Step Center Program Manager and learn from her.

1)    When did you start working for HPI?

December 2019.

2)    Why did you wish to work for Horizon Project Inc.?

I wanted a career, somewhere that I could make a difference a job that is rewarding not just to myself but to others as well.

3)    What do you feel is the most important part of working with Adults with Disabilities?

Sometimes you are all they have, sometimes you are the only person that believes they can do more and be more. Knowing the impact that you make in their life on a daily basis. Being someone, they count on and look forward to seeing. The smile on their faces when you help them achieve their dreams and goals.

4)    Could you share with us any memorable story/experience you had with clients?

This is hard to answer because EVERY DAY something amazing happens whether it is helping someone succeed in their job, showing them that they CAN or the smile on their face when they see you. I enjoy the conversations I have with clients and helping them believe their dreams are achievable. 

5)    Do you have any advice for anyone wanting to start working with IDD clients?

Be patient, be understanding and just be kind. See the good and the rewards of everyday life. No matter the situation there is positive and YOU make a difference in every single person’s life that you support. How do you want them to remember you, how do you want them to react when they hear your name? They are people just like you and I. They deserve the world just like you and I.

Tanna, is one of the amazing people that make difference and other peoples lives.

We are so thrilled to have her in our team!

“A mental illness is a condition that affects a person’s thinking, feeling, behavior or mood. These conditions deeply impact day-to-day living and may also affect the ability to relate to others. Mental health conditions are far more common than you think, mainly because people don’t like to, or are scared to, talk about them.” ^[1]

“Almost 60% of the world population is in work (1). All workers have the right to a safe and healthy environment at work. Decent work supports good mental health by providing:

• a livelihood;
• a sense of confidence, purpose and achievement;
• an opportunity for positive relationships and inclusion in a community; and
• a platform for structured routines, among many other benefits.

For people with mental health conditions, decent work can contribute to recovery and inclusion, improve confidence and social functioning. Safe and healthy working environments are not only a fundamental right but are also more likely to minimize tension and conflicts at work and improve staff retention, work performance and productivity.” ^[2]

4 Benefits of Physical Activity for People with Intellectual Disabilities

• 1. Improve Cardiovascular Health
• 2. Decrease the Risk of Obesity
• 3. Strengthen Bones and Muscles
• 4. Improve Mood and Mental Well-being

Suggestive Activities & Exercises for IDD adults.

• “Walking: walking is excellent for both physical and social interaction. Check out your local parks for information about trails and walking paths. Many places have paved paths that make it much easier to get around while still immersing you in nature. Some places even have handicap-accessible paths for people in wheelchairs.” ^[4]

• “Building Muscle and Flexibility: To stay in shape and prevent muscle atrophy, it’s important to do activities that engage all the major muscle groups. For adults with disabilities like cerebral palsy, this can be difficult. But there are always options that are both fun and healthy.” ^[4]

Examples:

1. “Yoga is an excellent source of exercise that provides both strength and flexibility.

• Swimming is also a perfect exercise for older adults and those with limited mobility.” ^[4]

• “Arm Circles: Stand up tall and extend your arms out to the sides as far as they can go. Bring your shoulder blades back towards each other and move your arms forward in small circles for 20 to 30 seconds. Then move your arms backwards in circles for 20 to 30 seconds. See how to do arm circles. [This will strengthen muscles in your shoulders, neck, and upper back. And it will increase your upper body strength and help improve your posture.” ^[1]

• “Squats: Stand up tall with your feet shoulder-width apart. Sit your butt backwards and bend your knees as if you are sitting into a chair. Keep your knees behind your toes (keep your weight on your heels, not your toes), and try to keep your back parallel to your shins. Doing this in front of a mirror or partner will help. Squat until your legs reach a 90 degree angle or until you cannot hold the proper form. Repeat 10 to 20 times. Here’s what your squats should look like. [This is a fantastic way to strengthen your core, hips, and legs.]” ^[1]

• “Arts and Crafts: Just like anyone else, engaging in artistic activities allows people with developmental disabilities to express themselves and be creative. This can be especially therapeutic for those who are unable or unwilling to communicate verbally. It also creates a feeling of accomplishment and satisfaction, which is important for our mental well-being as humans.” ^[4]

• “Music and Dancing: Music is one of our most ancient traditions as humans. Pretty much everyone can appreciate and enjoy music of some kind or another. Listening to music engages multiple parts of the brain in the memory, mathematical, and pleasure centers.” ^[4]

• “Cooking: Cooking as an activity for developmentally disabled adults has several benefits. It is fun, teaches self-reliance, provides a sense of accomplishment and is inclusive.” ^[5]

• “Gardening: Here’s a great way to gather a group together to nurture the seeds they plant and watch grow into beautiful flowers, vegetables and even trees. The ongoing project builds team bonds, work ethic dedicated to a common cause and the shared rewards.” ^[5]

Staying active is essential for people of all abilities and skill levels. So, let’s move our body!

Resources:

[1] https://casmircares.com/five-exercises-to-help-adults-with-idd-take-control-of-their-life/

[2] https://ilaonline.org/intellectual-developmental-disabilities-idd-and-exercise/

[3] https://sonc.net/benefits-of-physical-activity-for-intellectual-disability/

[4] https://www.compassionatehhc.com/home-health-care-services/day-program-activities-for-adults-with-developmental-disabilities

[5] https://www.colemanadultday.org/activities-for-adults-with-developmental-disabilities/